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May 20 Muscle Movement Disorders/DystoniaLiving with Dystonia does not mean NOT Living. There are Resourses out there, ready and waitng to be used. Some of the challenges of Living with Dystonia are
Seeing New Dr? Be ASSERTIVE! Ask about meds and Side effects. It's YOUR RIGHT!
Finding Good SPECIALIZED medical care for one's particular disorder..
needing contact with others who Live with dystonia..
Helping spouses and other family members to understand Dystonia..
Obtaining Disability funds ie: SSI or Social Security...
Resting VS Isolating
Managing Meds..
Volunteer services/Opportunities
Dystonia related events..
advocates when hospitalized
A place to Vent...
Tricks and tips for relaxing muscles
Knowing your triggers...
Dystonia Medical Research Foundation/Get People to donate!
Having Lived with this disorder, through trial and error ,I've overcome MUCH! so I may be able to steer you in the right direction . Email me at staciakace59@yahoo.com September 26 Poll!! need input!! |
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